Hard of Hearing Teenaged Fiddler Travels to Scotland

By Teresa Kazemir

Our son Jesse traveled to Scotland this past summer – he is a  fiddle player with the North Shore Celtic Ensemble, and they  participated in the Aberdeen International Youth Festival for  12 days in July and August.  It was an intense, exciting experience for the  20 teens that went – they all had a fantastic, if  exhausting,  time.

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Jesse is hard of hearing and wears two Bone Anchored Hearing Aids (BAHAs), so there were a few things to consider when  planning the trip.  For one thing, we made sure the chaperones knew that he would not wake up in case of fire, as he  would not hear the alarm.  Chaperones and other kids in his  flat were told that in the case of a fire, someone would have  to go into his room and wake him, and so Jesse made a point  of not locking his door when he was sleeping.  In fact, even  though he has a vibrating alarm clock, Jesse tends to fall back  to sleep after it wakes him up (teenage boys can really  sleep ), so there were a few occasions when his friends had  to wake him up for breakfast.   

Jesse also made a point of packing his dry aid kit – we have  found that in some places the air is more humid (especially if  we are camping and staying in a tent), and that causes problems with his hearing aids.  Storing the aids in the dry aid kit  each night helps with this.  Jesse also took it in case his hearing aids got wet – it rains a fair bit in Scotland.    

One security guard questioned Jesse about his hearing aids  when going through security at the airport.  Jesse is quite  practiced at talking to people about his hearing aids and hearing loss, and once he explained, they did not hassle him any  further.  I think it helped that Jesse was not at all defensive,  and was quite happy to explain.

There were some situations during the trip where Jesse found  it difficult to hear – he managed OK in the cafeteria, but the  cabarets we attended each night (where different groups performed for each other) were VERY loud.  It was so loud that  no one could hear, though, so Jesse was not alone.   

Jesse also found that each concert venue where they  performed was different, and there were a few places  where he had a hard time hearing the guitar (which is  critical when you are playing as part of an ensemble,  and the guitar sets and maintains the beat).  The musical directors of the group are very respectful and  understanding about Jesse’s hearing loss, but they  don’t necessarily know when Jesse is having a hard  time hearing. It’s his responsibility to let them know,  and then they make any necessary adjustments. When Jesse was new to the group, he was hesitant to  speak up, but as his confidence has grown, he has  become much better at advocating for his listening  needs.  There were two or three times this trip when  he was able to adjust where he stood so he could  btter hear the guitar through the monitor on stage.

Another challenge was the fact that participants  came from all over the world.  Many people spoke  English, but with a whole variety of accents.  This  typically presents a challenge for people with hearing  loss, but Jesse actually found that he could understand most accents quite well.  He did struggle with the flight attendants from Air France, who had very  strong French accents.  He found he used the same  strategies as everyone else – listening carefully, asking the person to repeat, or asking a friend for clarification.

Overall, Jesse’s hearing loss did not really cause many  problems for him on this trip. Preparing ahead of  time definitely helped (talking with chaperones, packing the dry aid kit).  The challenges a person encoun* ters when travelling certainly vary from person to  person, depending on their hearing loss and other  factors, but one key strategy is to be proactive and be  prepared.   Other than that, perhaps the best tool is a  sense of humour – a smile and a laugh certainly help  to smooth things over when an instruction is missed  or something is misheard.

As a parent (and chaperone) it was really good to see  how independent Jesse has become, and how he can  use strategies to compensate for things he might be  missing.  I have chaperoned on several trips over the  years (ensemble trips and school trips) and have  found it to be a wonderful way to help the other kids,  teachers, leaders and parents learn more about  Jesse’s hearing loss.  There are oUen nice, natural  opportunities for people to ask me questions that  they’ve never quite got around to asking.   So, Scotland was great, Jesse now has the ”travel  bug”…and I am confident that his hearing loss will not  hold him back.

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Posted in Families to Families, Newsletter - Apr 2011 | Comments Off on Hard of Hearing Teenaged Fiddler Travels to Scotland

Spring Picnic at Clayton Community Hall

Our third Annual Spring Picnic will be another opportunity to meet other families with children who are deaf or hard of hearing, ages 0-5.

Saturday, May 28th 11:00 am to 2:00 pm

Clayton Community Hall (on 70th Avenue near 184th Street in Surrey)

(click for map)

  • Meet at the shelter near the playground – look for the blue & orange balloons!
  • Bring the whole family and a potluck dish to share (beverages will be provided).
  • Don’t forget your blankets & lawn chairs. We will move into the hall in case of rain.
  • Fun for the kids! Face painting, crafts, parachute games, races & playground.

Please RSVP by Wednesday, May 25th to info@bchandsandvoices.com or phone us at 604-552-2254. Please include your names, the age(s) of your child/children, and what you would like to bring.

For those that live outside the Lower Mainland, We have a grant from BC Children’s Hospital to help pay your travel expenses to come to our event!  It will not cover flights, but would certainly help with ferry fares, gas, etc.  Please contact us to find out more details.

Download a printable version of this announcement

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Blossoming in Kindergarten – Punjabi Translation

CaitlinBy Jennifer Towers

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Link to English version

This translation is made possible with the generous donation of the Gwyn Morgan & Patricia Trottier Foundation.

Posted in Newsletter - Apr 2011, Newsletters, Punjabi ਪੰਜਾਬੀ | Comments Off on Blossoming in Kindergarten – Punjabi Translation

Blossoming in Kindergarten – Traditional Chinese 琪蓮(Caitlin)在幼稚園的進展

CaitlinBy Jennifer Towers

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Link to English version

This translation is made possible with the generous donation of the Gwyn Morgan & Patricia Trottier Foundation.

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Blossoming in Kindergarten – Simplified Chinese 琪莲(Caitlin)在幼稚园的进展

CaitlinBy Jennifer Towers

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Link to English version

This translation is made possible with the generous donation of the Gwyn Morgan & Patricia Trottier Foundation.

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Blossoming in Kindergarten

CaitlinThree years ago when our daughter Caitlin was 18 months old, she barely spoke ten words. We were concerned about her development so we took her for a hearing test (no screening was available when she was born). It turned out she had permanent mild to moderate sensorineural hearing loss. She was fitted with hearing aids within two weeks and then began intervention a month later. In my sadness, one big concern was whether she would be able to enter kindergarten in our neighborhood school with the young children she already knew. But, three years later, after consistent hearing aid use and weekly intervention, she was ready to go to our local school with her friends.

In the spring before Caitlin turned five, both her preschool teacher and speech and language pathologist thought she was ready to go to Kindergarten that September, but I was nervous about how it would all go. She is a late November baby, was still quite shy/quiet in group situations and she had just managed to learn her capital letters after hours of practice. To make matters worse, we had watched Caitlin struggle through the years with new concepts like learning her colours and the names of her extended family members. I was so worried that the new concepts in Kindergarten would take her a long time to master.

What put our minds at ease was we knew she would receive tons of support. Back in the spring, Caitlin’s preschool teacher (coincidentally a mother of a hard of hearing teenager) referred us to a hearing resource teacher in our school district. We had a meeting in May and started planning her IEP (individualized education plan) with the professionals who would be working with Caitlin. The hearing resource teacher also arranged all the paperwork designating Caitlin such that she would receive as much support as possible. This designation led Caitlin to share a full time specialized education assistant (SEA) with another boy in her kindergarten class. In September, I attended an IEP meeting with the SEA, the classroom teacher and the hearing resource teacher. We spent an hour talking about goals for Caitlin and set three goals connected to her speech, listening and independence with her FM and speaker system. We were told she would be the only child with a hearing loss in her school, which was worrisome. But she spoke well and was very social in small group situations, so we hoped for the best as she embarked into Kindergarten that fall.

Caitlin’s classroom was (happily) small and carpeted, creating an easier listening environment. In addition, the room is bright, colourful and full of books and toys. Overall, the classroom is stimulating but there are predictable routines. The hearing resource teacher works with Caitlin for an hour each week for a one on one session on the IEP goals we set. Also, the classroom teacher uses a sound field system to amplify her voice for all students (so she is very used to wearing a microphone). Caitlin’s FM system patches in reasonably well. The hearing resource teacher even spoke to our hearing aid company and arranged for a dynamic sound field system that matches even better with Caitlin’s FM – so Caitlin is receiving excellent sound quality.

With all of these accommodations and supports, Caitlin has done better than I ever expected. She loves learning her letters and quickly picked up her lower case letters. She is very independent and enjoys picking out original and fashion forward outfits in the morning before school and putting on and connecting her FM when she arrives at school. She looks forward to “special helper day” when she gets to bring something from home in a box writing the first letter of each object on the outside. In September had to help her; by November she chose three items (two frogs and a bird) independently. I looked on the front of the box and she had written “FFB” all by herself – wow, what progress! Caitlin started the year as a very quiet child and did not share her thoughts, but the teacher now tells me that she offers answers during circle time. Caitlin loves making play dates and plays well with others.

The best moment was in December at the Christmas concert. Each class from Kindergarten to Grade Four sang two songs. When I watched our older son in that concert last year, I couldn’t even imagine Caitlin standing up there. If she could be dragged up there, I imagined her standing, head down and silent. Instead, to our delight, Caitlin confidently walked onto the risers, and faced forward, head held high. She sang the songs with joy on her face. She didn’t just sing – she shouted and I sat in my chair and smiled from ear to ear.

Our little girl has blossomed into a fully communicating, happy student who is succeeding in school. We have a long way to go yet (she needs to learn to read and understand math and of course so much more) but I definitely feel much more confident. The support to make sure that the many small things are in place that all add up to helping her succeed has been amazing, and Caitlin has thrived.

Read this article in PUNJABI
Read this article in TRADITIONAL CHINESE
Read this article in SIMPLIFIED CHINESE

Posted in Newsletter - Apr 2011, Newsletters | Comments Off on Blossoming in Kindergarten

Family Fun at Crash Crawly’s!!

Come join us at Crash Crawly’s on Sunday March 13th from 10am to 1pm!  It will be a wonderful opportunity to meet other families with children of all ages who are deaf or hard of hearing.

This event is jointly hosted by BC Hands & Voices, CHHA-BC Parents’ Branch, and Family Network for Deaf Children.

Crash Crawlys invitation & registration

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Ho Ho Huh? Tips for Surviving the Holidays

January 2011
Contributed by Lorna Irwin, Idaho H&V
You’ve done whatever you need to do to give your deaf or hard of hearing child access to communication at  home through amplification, creating a good listening environment and/or employing some form of visual communication.Suddenly the holidays arrive; the extended family gathers, the noise level goes up, and it’s enough to confuse any child, let alone one who can’t hear everything that’s going on. How can you reduce the stress of family events, and even turn them into something meaningful and memorable? We’ve gathered the following tips from Idaho Hands & Voices families and other sources.
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Fall Parent Workshop: Tips for Raising Happy, Confident Kids

January 2011

By Teresa Kazemir

BC Hands & Voices was thrilled to have Dr. Janet Jamieson present at our Fall Parent Workshop. She started things off with an informative and encouraging talk about self-esteem in children with hearing loss.
This was followed by a panel of confident, inspiring teens and young adults. They talked about their personal experiences growing up, and some interesting situations they have encountered. After a lunch break and a chance to socialize with other families, it was time for a panel of “veteran” parents, who shared their stories and some practical pointers for raising happy confident kids. Here are a few key ideas and tips from Dr.  Jamieson’s presentation:
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A California Adventure with Benefits

January 2011

By Anja RosenkeCalifornia Adventure

“You’re going to California for a whole month?!” We smiled at the looks of disbelief that accompanied that question. Yes indeed, we had been accepted to the last of the three international summer sessions for 2010 at the John Tracy Clinic in Los Angeles, California. An adventure awaited. As Louise Tracy herself said, we, as parents of children who are deaf or hard of hearing, are each pioneers embarking on a unique adventure in teaching our children. This particular adventure would take us over a thousand miles south from our home in Vancouver, BC. And that was just the beginning.

Continue reading 

Posted in Families to Families, Newsletter - Jan 2011 | Tagged , , , , , , , , | Comments Off on A California Adventure with Benefits
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