Parent Coffee Night – May 12

Please join us for our next coffee night on Monday, May 12, 2014!

parent coffee

Time: 7:30 – 9:00 pm (Please note that we have changed the start time from 7pm to 7:30 to help out commuters. Coffee night will conclude at 9 pm as usual.)

Location: Cathy Luther’s house, #27 – 7488 Southwynde Ave, Burnaby. Look out for the orange and blue balloons! Parking is along the street.

Come on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss. Please feel free to pass along the invitation to anyone else who may be interested.

Please RSVP to Anja at arosenke@telus.net so we can get an idea of numbers.

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Fun Family Picnic

2014 picnic notice

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BC Hands & Voices AGM and Coffee Night

We hope you will join us at our upcoming Hands & Voices coffee night; we are thrilled that Jenny Hatton has agreed to join us as a guest speaker! Jenny is hard of hearing, and is now an audiologist with the BC Early Hearing Program.   She will share her story (in our usual informal Coffee Night manner), and is happy to answer any questions you might have about what it was like to grow up with a hearing loss.

Please note a couple of changes for this month’s coffee night:

DATEThursday, March 6 (**not a Monday)
TIME7pm for AGM portion, with guest speaker to begin around 7:30-7:45. Please feel free to attend the AGM as well to hear about all the great things Hands & Voices is doing and to meet our board members.
PLACEChildren’s Hearing & Speech Centre of BC. The address is 3575 Kaslo Street, Vancouver.

We will have hot drinks and baked goods on hand as usual, and are looking forward to seeing you there. Don’t hesitate to contact us should you have any questions!

RSVP to arosenke@telus.net

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Parent Coffee Night – January 20

We have our first coffee night of 2014 scheduled for
Monday, January 20, 2014!

parent coffee

Time: 7:30 – 9:00 pm (Please note that we have changed the start time from 7pm to 7:30 to help out commuters. Coffee night will conclude at 9 pm as usual.)

Location: Cathy Luther’s house, #27 – 7488 Southwynde Ave, Burnaby. Look out for the orange and blue balloons! Parking is along the street.

Come on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss. Please feel free to pass along the invitation to anyone else who may be interested.

Please RSVP to Anja at arosenke@telus.net so we can get an idea of numbers.

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Inject a little Music into Communication Therapy

By Gina Cooper-Watt, Campbell River, BC

I admit it, I am a research junkie. When my daughter was born, I became a “Google Mother.” As I sat at the computer, rocking Sara in one arm and perusing the internet with my other hand on the mouse, I would read fascinating articles on parenting, and experiment with many of them.

music

One particular parenting site claimed that exposing your baby to classical music could stimulate her brain and make her smarter. (“The Mozart Effect”- a theory which has now been debunked.) My daughter spent many hours each day playing and listening to Mozart and other classical musical legends, all the while not hearing anything, and possibly wondering why mommy was dancing around the house with a proud flair at the thought of her brainchild becoming a famous gifted “something or other!!” Oh, the irony.

This experience etched itself in my mind, however, and shortly after my daughter was identified with profound hearing loss, I once again found myself Googling. This time, I was researching music and deafness. I came upon a very interesting article describing how Music Therapy can play a role in the speech development process for the children with hearing loss, published by our city’s Music Therapy Association.

Of course, I enrolled my daughter in private music therapy lessons at the association, group music therapy classes at our Outreach Organization, a playgroup where singing played a part in the structure of the class, and a toddler dance class. I also found an online support group with a member who happened to have a lot of knowledge with regard to cochlear implants and music. He suggested flooding your child’s ears with songs that had long, deep base lines such as Barry White and Isaac Hayes as this style of music has less disturbing factors and interference than other songs. I became an official “Pageant Mother” to my somewhat concerned yet curious family members. Could all of this really help Sara learn to speak more effectively?

Music therapy can lend itself to traditional auditory training by providing an alternative and pleasurable environment in which to help a child learn to listen. Both speech and music contain pitch, tone, rhythm, timbres, duration and intensities. Children can learn how to distinguish, identify and understand these sounds with careful exposure to them. Music therapy can become a motivating tool and can enliven speech therapy sessions! Furthermore, music therapy can also be effective in teaching children who use equipment for listening how to pay attention to sounds, the differences in sound, recognizing objects and events from their sounds, and how to use hearing to determine the distance and location of sound.

My daughter’s curiosity level definitely peaked while exposed to all the different musical instruments, during her private and group music classes. She would stare at, and try to mimic the music therapist’s mouth movements as she sang at various levels. The group music class certainly provided a fun family environment where all we parents would gather around the music teacher, dance with and sing to our children, take turns playing an instrument, sing a line of a song and listen to the sounds of everyone’s differing voices.

Music facilitates family bonding! “Dancing with the Stars” would play every Thursday evening while daughter and mommy would take turns as Daddy’s dancing partner. We would do our best to sing along to every song, keep the beat and find the rhythm to every dance style. We learned as well, through many humorous evenings, that my partner is a wonderful baritone and I am a natural at the Rumba. We now tend to leave the singing to daddy and the dancing to mommy to best offer our natural ‘gifts’ to our child.

Music can be a wonderful way to help children learn routine transitions and help prepare them for a sound sleep as well. Singing bedtime stories to your child can help your child to not only recognize and attach meaning your voice but also teach self-soothing techniques and emotional connection through tone of voice. Music can induce physical relaxation and help set an emotional tone of peace and well-being needed for a good night’s sleep.

Rhyming is also essential to speech, language and literacy development. Songs such as The Wheels on the Bus, Hey Diddle Diddle and the Itsy Bitsy Spider all incorporate rhyming and repetition that help develop an awareness of speech sounds. By singing songs loaded with early developing sounds such as p, b, t, d, k, g, and m, you can possibly give your child a ‘head start’ to great listening and speaking skills.

At two years of age, my daughter’s attention span would only last half an hour but it certainly gave us enough time to expose her to a wide range of sounds, help to stimulate the auditory nerves, and hopefully set a foundation for learning to listen. I also discovered through research that deaf people not only enjoy but benefit from music. Evelyn Glennie, a famous deaf percussionist, and subject of the fascinating film “Touch the Sound, explains how she “feels” music through its touch and vibration.

While I don’t claim that music therapy is a critical component in the speech development process, in my opinion and personal experience it definitely was a stimulating experience.

You don’t have to become a “Pageant Parent” either. That phase was short-lived with me as I do not want to burn out in this journey. Learning is an ongoing process and now we, as parents and partners, involve our daughter in just one ‘extra-curricular’ activity per season to enhance speech therapy.

What I really liked about our experience with Music Therapy is that it made therapy fun. As a cochlear implanted child, with years of communication therapy ahead of her, I am really striving to ensure my daughter’s childhood is filled with happy, fun memories, not a lot of tedious therapy sessions and ‘forced’ communication training. To me, this cochlear implant tiourney and all of its therapy and training is about being as natural and as fun as possible.

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5th Annual Fall Parent Workshop

“Parent to Parent—Sharing Our Wisdom”

Saturday, October 19, 2013
10:00 am to 3:00 pm

Douglas College, New Westminster Campus
700 Royal Avenue, New Westminster, BC  (1 block from New West SkyTrain Station)
Click here for campus information and map

Hosted by BC Hands & Voices and Guide By Your Side

Join us for our annual parent workshop. This year’s focus is on learning from other parents.  We are delighted that Cecelia Klassen and Cathy Luther will kick start the day. These parents of young adults who are deaf or hard of hearing will share their experiences, telling us what they know now that they wish they had known from the start.  A panel of parents of school-aged children will follow, reflecting back on what they have learned over the years. There will be lots of opportunity for discussion, to ask questions and share experiences. Deaf and hard of hearing role models (teens and young adults) will be helping out with the event and participating in our “Cafe Style” lunch.

Cost: $10 per child, $10 per adult, cash or cheques accepted

  • ASL interpreting will be provided.
  • Childcare will be provided and lunch is included in the cost of registration. If cost is a barrier, please contact us. Scholarships are available.
  • We are able to offer a grant (thank you to the BC Children’s Hospital Foundation) to cover some travel expenses for families who live outside the Lower Mainland. Please contact us for details.
  • Membership in BC H&V is not mandatory, but your membership helps support what we do and what we stand for. Membership can be purchased at time of registration. Our unique Hands & Voices necklaces and t-shirts will also be available for purchase that day.

RSVP by Wednesday October 9th; online at http://www.bchandsandvoices.com/2013-fall-workshop/workshop-form/ or email info@bchandsandvoices.com. For more information, contact 604 552-2254 (questions only, not registration), or info@bchandsandvoices.com.

Download the flyer here.

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Parent Coffee Night – September 16

Monday, September 16, 2013

parent coffee

Time: 7:30 – 9:00 PM (please note the time has changed from last year)

Location: Cathy Luther’s house, #27 – 7488 Southwynde Ave, Burnaby. Look out for the orange and blue balloons! Parking is along the street.

Come on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss.

TOPIC: TBA

Please RSVP to Anja at arosenke@telus.net.

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Keep ‘em Safe, Wear ‘em Proud! (updated April 2023)

Tips for Keeping Hearing Equipment on Babies, Toddlers, & Preschoolers

By Teresa Kazemir

I remember driving home from the audiologist with brand new hearing aids in a box on my lap – little did I know what lay ahead in terms of keeping hearing equipment on a baby!  Some things we learned:

–   Hearing aids tend to whistle whenever a baby’s head leans against something – which happens a lot when young babies are cuddled and when they sit in car seats, strollers, swings, etc.

–   If babies spit up a lot while they are laying on their back, it tends to run into their hearing equipment.

–   It can be tricky to find a hat that keeps the baby’s head warm, keeps the hearing aids dry, but does not make the hearing aids whistle.

–   As babies get older, they like to put everything in their mouth – including their hearing equipment!

–   When babies get to be toddlers, they think ripping off hearing aids and throwing them is a super fun game!

Not every deaf or hard of hearing child uses hearing equipment, and different families may have different goals in terms of how many hours each day their child wears amplification. But if your goal is for your baby, toddler or preschooler to wear their hearing equipment and you are finding it tricky – YOU ARE NOT ALONE!!

We’ve compiled some tips and websites suggested by other parents – we hope you find them helpful.  (Please note: BC Hands & Voices does not endorse any particular product, nor do we benefit financially from the sale of any of the products mentioned below.  These are merely suggestions based on what other parents have told us they have found helpful.  Also, we recommend that you keep in mind any potential choking hazards if you are considering some of these products for a young child.)

Tip # 1 – Wig tape

Wig tape can be really helpful for keeping hearing aids or cochlear implants in place on tiny ears, especially if they are flopping around.  You can usually buy it at any store that sells wigs, or you can order it online, a quick google search pulls up various sellers (e.g. https://hairtape.com/3m-1522-clear-tape/. The ½” width generally works well.

Tip #2 – Covers, Cords & Clips

There are many products available that are designed to help keep hearing equipment on an infant or young child.  You may have to experiment and try a few before you find what works best for your child.  Your early interventionist or audiologist might be able to request free samples for you to try.  You can try the following sites, or search for “hearing aid retention” on your web browser.

Ear Gear (www.gearforears.com) – colourful water-resistant covers which can be attached to clothing with a clip. These are made in BC.

Huggies (https://www.diateccanada.com/en/huggie-aids) – can stop the aids from flipping off of the child’s ears, so they are less distracting and the child is less likely to yank them off.

Critter Clips (https://adcohearing.com/collections/ear-care-hearing-aid-supplies-clips-and-loss-prevention-clips-for-kids/products/critter-clip-bte-binauraldouble) – a lightweight lanyard attaches to the hearing aid and clips to the child’s clothing with a colourful clip (also Dino Clips and Sea Clips).

Otoclips (https://adcohearing.com/search?type=product&q=otoclip) – plain clips and cords designed to attach hearing aids to clothing.

SafeNSound security straps (www.getsafensound.com) – these fit snugly to the head and are hard for babies to reach; they can also work with glasses and they have one that connects to a hair barrette.

There are also some home-made options for keeping hearing aids attached to clothing.  You can use dental floss or fishing line to connect the hearing aids and pin it to the back of the shirt. Pacifier clips can sometimes work or those cords that are meant to keep on eyeglasses – you can fit the flexible loop at the end around the hearing aid and pin the centre of the cord to the collar of the shirt.

Tip # 3 – Hats

Some families find that using a hat is a very good way to keep babies and toddlers from pulling off their hearing equipment. Homemade bonnets that tie or snap under the chin can also work well, and there are several options available on Etsy:

https://www.etsy.com/ca/search?q=bonnet%20for%20hearing%20aids 

While hats can be a solution, they can also be problematic.  Depending on the type of hearing equipment your child uses, some families find it challenging to find a winter hat that will keep their child’s head warm but will not cause feedback. Several parents suggest using a loose-fitting crocheted or loosely knitted hat or touque.  For the rain, a loose-fitting hood on a jacket can work well. You may need to experiment to see what works best for your particular child.

Tip #4 – Headbands

Families of children who use Bone Conduction hearing aids or softband Bone Anchored hearing systems (BAHAs or Bahs) are often looking for headband options. In addition to products available through the hearing aid companies, a quick “softband” search on etsy.com turns up a multitude of colourful options for decorating and making your child’s BAHS as unique as they are! https://www.etsy.com/search?q=softband

A member from our own community shared tips for how to modify your softbands yourself. Read the article here: https://www.bchandsandvoices.com/post/how-to-customize-your-baha-soft-band/

Tip #5 – Decorations

One way to motivate young children to wear their hearing equipment is to make it bright and colourful and fun to wear.  Here are some products that our readers recommend:

Skinits (www.skinit.com) – vinyl stickers specially shaped to fit on cochlear implants and are easily removable without residue. Countless designs are available.

Hearing Aid Pink

“My son loves them! It MOTIVATED him to wear both his CIs more than ever! In public places, people were raving about them, he was so proud of them! I love them. I will order them again when it’s time to replace them. They have thousands of designs to choose from!”  Karen Jackson

Canucks Hearing Aid

 

 

 

 

 

 

 

 

 

 Hayleigh’s “Cherished Charms” are another decorative product, designed by a teen-aged girl who wants to help kids and adults to be proud of their hearing aids (www.hayleighscherishedcharms.com). Hayleigh’s shop was temporarily closed during the pandemic, but hopefully it opens again soon.

Tip #6 – Some Less Conventional Ideas 

A less conventional idea I heard recently was to use inflatable swimming arm bands. They can be decorated with stickers or felt markers and apparently prevent a toddler from reaching his or her ears to pull the hearing aids off. This was also suggested as a strategy for making earmold impressions in the audiologist’s office.

Someone also suggested bandaids for keeping cochlear implants on during activities such as tumbling, and using a Bounce sheet inside a touque to prevent static electricity building up (also for CI’s).

Tip #7 – Distraction, Positive Reinforcement and Rewards

Distraction, positive reinforcement and rewards are very useful parenting tools.  Distraction can be one of the best strategies for babies and toddlers. Many parents find it works to give the child something to keep their hands busy when they are first putting in the hearing aids. This might mean having some special toys that only come out when the hearing aids first go on or a special game that you play. Unfortunately, as parents we do not always have time to entertain our baby every waking minute, but often young children will forget about the hearing aids in their ears if they’ve been distracted by something else.

As toddlers get a little older, positive reinforcement can work well. Children may respond to praise for wearing the hearing equipment and may also start to understand that the hearing aid or CI is helpful – “Now you can hear the music!” Children also benefit from seeing other children who are like them, either in person or through books, DVD’s, or TV shows. (I remember there was a little boy on the TV show “Barney” who wore the same type of hearing aid as my son did when he was young, so we’d watch that show occasionally and I’d point out the boy’s hearing aid.) There are more and more children’s books available that feature deaf and hard of hearing characters (e.g. ‘All the Ways I Hear You’
https://www.amazon.ca/All-Ways-I-Hear-You/dp/0578598973/ref=sr_1_20?crid=237Z9P934G03D&keywords=children%27s+books+hearing+aid&qid=1677260890&sprefix=children%27s+books+hearing+aid%2Caps%2C87&sr=8-20

And for the child who is a little older and understands the concept of a reward, you can always try candy, raisins, stickers and little dollar store toys as incentives for keeping the hearing aids on. Of course that also means finding a way to wean your child off of the incentives later, as the dentists of the world would probably frown on the idea of bribing our children with candy every time we put the hearing aids on!!

Tip #8 – Some General Resources on the Net

There are some great sites on the internet that you can look at for more ideas, such as:

Tip #9 – Check in with your Audiologist

It is always a good idea to check in with your audiologist regularly, particularly if your child is refusing to wear their hearing equipment or is responding differently than he or she has responded in the past.  It’s important to make sure the earmold or hearing aid isn’t rubbing and making a sore spot and that your child doesn’t have an ear infection. The audiologist can check to make sure that the earmold is fitting correctly (babies grow out of earmolds very quickly), that the hearing aid is working properly (children will sometimes pull off a hearing aid or implant that has a dead battery or is not functioning well), and that the hearing equipment is set correctly.

Tip #10 – Give yourself a break

While your goal may be for your child to wear their hearing equipment regularly, this usually doesn’t happen overnight. Some babies are easy going, and some toddlers ask to wear their hearing equipment, and don’t want to take it off. Other children, however, go through stages where they are determined to remove the equipment the instant you put it on. Try not to get frustrated, and take time to enjoy your child without always being focused on the equipment. During times when your child may not have access through listening, you can still communicate using touch, gestures, signs, etc. If you are concerned that your child is not getting enough access to spoken language, you can talk to your early interventionist about opportunities to learn American Sign Language. You know your child best, and you’ll eventually figure out what works for them and for your family. 

So if you are struggling to keep hearing equipment on your child, we hope some of these tips might be helpful. Also, we hope you realize that you are not alone in this struggle. Many parents find this stage challenging, and we encourage you to talk to other parents for both ideas and support.  Come out to a BC Hands & Voices event, call your Parent Guide, ask to meet other parents through your early intervention agency or drop us a line on Facebook or by email.  We can be such a great resource for one another!

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Parent Coffee Night – June 17

Monday, June 17, 2013

7:00 – 9:00 PM
4334 Victory St., Burnaby BC – house #3. We will have balloons out to mark the spot.

parent coffeeCome on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss.

TOPIC: TBA

Please RSVP to Anja at arosenke@telus.net.

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Fun Family Picnic – June 8

Fun Family Picnic

picnic_invitation_webCome join us at this event for deaf/hard of hearing children, their siblings and parents and children with their Deaf/hard of hearing parents (CODA)

Saturday, June 8 – 11:00 am to 3:00 pm
Provincial Deaf and Hard of Hearing Services
4334 Victory St., Burnaby BC

Join us for a fun day!

We will provide:

  • Hot dog lunch
  • Entertainment and games for the kids
  • An opportunity to mix and mingle with other families and with youth/young adults who are deaf or hard of hearing.

Please bring with you:

  • A dessert to share (note no freezer/fridge/oven)
  • Drinks for your family (No alcohol, please)
  • Lawn chairs or blanket to sit on

Rain or Shine!  Free admission! (Donations gratefully accepted at the event.)

Hosted by:

BC Hands and Voices
Guide By Your Side
Family Network for Deaf Children
CHHA BC Parents’ Branch
Family and Community Services

Parking:

Parking is available on Victory Street and on McKay Avenue

Registration:

Pre-registration is required so we know how many people to expect!

REGISTER ONLINE by May 31 at www.CHHAparents.bc.ca

Coming from out of town?

  • Travel grants available for people coming from outside of the Lower Mainland.
  • Limited accommodations available at Victory Hill.

Please contact us for details at info@CHHAparents.bc.ca

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