Parent Coffee Night – February 18

Monday, February 18, 2013

7:00 – 9:00 PM
4334 Victory St., Burnaby BC – house #3. We will have balloons out to mark the spot.

parent coffeeCome on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss.

Topic: “Open Mike (without the microphone)”
We, as parents, always seem to have lots of questions circulating in our minds. So come to share, to ask questions or just to listen and be among friends.

 

Please RSVP to Anja at arosenke@telus.net.

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Parent Coffee Night – January 21

Monday, January 21, 2013

7:00 – 9:00 PM
4334 Victory St., Burnaby BC – house #3. We will have balloons out to mark the spot.

parent coffeeCome on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss.

Topic: Bring Your Own Audiogram

BYOA! Bring your own audiogram to coffee night this month. We will be take some time to decipher and understand better our children’s audiograms. What do all those symbols even mean? Feel free to peruse the attached link beforehand, or we will have copies available on Monday night as well. As always, we hope you join us for warm drinks, homemade treats and the opportunity to meet other parents who have young children with hearing loss. We hope to see you there!  http://www.babyhearing.org/HearingAmplification/HearingLoss/audiogram.asp

Please RSVP to Jennifer at jtowers900@gmail.com.

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Parent Coffee Night – December 17

Monday, December 17, 2012

7:00 – 9:00 PM
4334 Victory St., Burnaby BC – house #3. We will have balloons out to mark the spot.

parent coffeeCome on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss.

Topic: “Strategies for communicating with siblings and friends”

We will be discussing a variety of communication strategies to use with siblings and friends to allow for full accessability of all involved.

Please RSVP to Jennifer at jtowers900@gmail.com.

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Parent Coffee Night – November 19

SO SORRY BUT WE CANCELLED THIS MONTH’S COFFEE NIGHT – We only had one RSVP so we cancelled. We apologize for not cancelling through the mailing list – sorry for any inconvenience and hope to see you next month.

Monday, November 19, 2012
7:00 – 9:00 PM
4334 Victory St., Burnaby BC – house #3. We will have balloons out to mark the spot.

parent coffeeCome on out for coffee, treats and the chance to get to know other parents of kids with hearing loss. It’s a great place to share ideas about how to support your children with hearing loss.

Topic: “Strategies for communicating with siblings and friends”

We will be discussing a variety of communication strategies to use with siblings and friends to allow for full accessability of all involved.

Please RSVP to Jennifer at jtowers900@gmail.com

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Numb Hands and Other Bits

The road stretches ahead of me, the next bend almost out of sight. Poplars wave in the breeze and the sun beats down. This is the worst part. The novelty of the start has long worn off, I haven’t seen another rider for the last hour, the varied terrain
between Maple Ridge and Mission is behind me and the bald eagle soaring in the sky above me has gone its separate way. I know that I have at least another hour to go and it’s getting harder to relieve the numbness that keeps coming back into my
hands from being on the drop bars for so long. Now it’s just me and the road, as I try to stay focused on keeping the right distance from the road edge. Too far in and I am in the loose gravel at the side of the road, sucking energy and slowing me down, risking a flat, or if I move out too far into the road I risk getting side-swiped by some truck.

I am 3 hours into a 120km bike ride that will take me from Brentwood Mall in Burnaby out to Harrison Hot Springs following the Lougheed Highway. I remind myself why I am on this grueling ride. It is to help the Rotary Club of Vancouver raise money for hearing programs across BC – programs that directly help my son who is profoundly deaf and
wears 2 cochlear implants.

This year I am just one of 130 riders participating in Rotary’s annual Ride For Hearing, but as a group we managed to raise over $125,000 in pledges. The Rotary Club of Vancouver has been organizing the Ride for Hearing event for the past 27 years and have raised over $2.2 million in total. Funds have been used to establish the Rotary Hearing Centre at UBC Hospital and the Rotary Hearing Clinic at St. Paul’s Hospital. Organizations such as BC Children’s Hospital, Children’s Hearing and Speech Centre of BC and the BC Family Resource Centre have also benefited over the years.

Since these organizations have helped my family greatly, I am pleased that I can do a little to give back. And for me, its as easy as getting on my bike. So I put my head down and keep pedaling, even looking forward to the hills ahead because I know there’s a reward at the end.

After 4 hours of non-stop riding, I arrive at the finish line in front of the beautiful Harrison Hot Springs Resort . And there it is – the sight I’ve been waiting for – my wife and kids cheering and waving me in. The kids are not quite sure how Daddy got there, or why I’m drenched in sweat and having trouble walking, but they’re happy to see me.

numbhands

After a few celebratory photos we head inside for refreshments and spend the rest of the enjoying the complimentary use of the Harrison Hot Springs Resort pools. Man, did it feel good to slip into that pool! I can’t wait for next year.

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4th Annual Fall Parents Workshop – October 27

BC Hands & Voices and Guide By Your Side present:
Fourth Annual Fall Parent Workshop

Keeping Your Eye on the Prize: Inspiring Stories from Young D/HH Adults

Fast forward 20 years—your child will grow up! Ever wondered how your child’s hearing will affect his or her school experiences, making friends, ability to play sports, enjoy music, or dance? Will our children encounter barriers? Will they find their passion in life? Will they grow up to be happy, confident, successful adults? Don’t miss this great opportunity to meet and learn from young adults who have grown up deaf or hard of hearing!

Speakers • Panel • Discussion

Saturday, October 27, 2012
10:00 am – 3:00 pm
Children’s Hearing and Speech Centre of BC
3575 Kaslo Street, Vancouver
$10 per adult • kids free • lunch included

Please REGISTER by Wednesday, October 17, 2012:

Register online now, or email info@bchandsandvoices.com

  • Childcare will be provided at no cost, but children must be pre-registered
  • ASL interpreting will be provided
  • Our unique Hands & Voices necklaces and t-shirts will be available for purchase that day
  • We have a travel grant from BCCH to cover some travel expenses for families who live outside the Lower Mainland; Please contact us for details

You can download a printable flyer here. Call BC Hands & Voices at 604-552-2254 with any questions

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BC Hands and Voices Summer Get-Together

Hosts: Anja and Jennifer

Join us for some fun in the sun at Grimston Park http://www.newwestpcr.ca/parks/community_parks/grimston_park.php! There’s a great playground and wading pool for the kids. Be sure to bring your blankets,snacks and suncreen. As always, look for the blue & orange balloons! ASL interpreting available on request – if required, please RSVP by Thursday, Aug 23.

Date: August 28th from 11am to 2pm

Location: GrimstonPark (1900 17th Ave), 19th Street & 7th Avenue, New Westminster, close to the 22nd street skytrain station

Grimston Park Wadding Pool

Questions & RSVP’s to jtowers900@gmail.comarosenke@telus.net

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Parents Coffee Night

Coffee Nights will Resume in September – Have a great summer!!

Are you wanting to get to know other parents with kids with hearing loss?
Do you want to share ideas on how to support your children with hearing loss?
Do you want to get out and meet some new people?
or do you just want to come out and have some coffee and treats in the evening?

….Well then we are the group for you.

Time:  7-9pm at Victory Hill:   4334 Victory St., Burnaby BC – house #3. We will have balloons out to mark the spot. Image of Victory Hill Residences

The dates:

Sept 17th – come and meet everyone and discuss possible topics/guest speaker for this year

Oct 15th

Nov 19th

Dec 17th

Jan 21st

Feb 18th

March 18th

April 15th

May 27th

June 17th

Please RSVP at least 2 days before each meeting to ensure we have enough coffee/tea and snacks.

Flyer – print and distribute if you wish

Link:   www.bchandsandvoices.com

Contact info:  Jennifer at jtowers900@gmail.com

 

 

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The Big Move

By Anja Rosenke

The countdown is on – my son turns 5 in a couple of months and is due to enter Kindergarten in September. Officially, early intervention ends at this point and I am already preparing for the distinct shift that will occur as he transitions into his next phase of life, that of the school-aged child.

I can’t help but feel a mix of both apprehension and excitement about this – knowing full well how fortunate we have been over the past 3 and a half years to have received both comprehensive services for our son’s needs and an incredible level of individualized support as a family. Like many of you, we have also developed close friendships with other families within our early intervention agency – people who understand us simply because they are going through the same thing. Come September, many of these children will move on to a school within their local school district or an independent school of their parents’ choosing.

So what awaits us out there in the “post-five” world? The Big Unknown! A new school, new teachers, new professionals, new schedules and new protocols. Daunting, right? It might feel like starting from scratch again, learning to navigate this new educational system. But with a bit of research and preparation, the move into the mainstream doesn’t have to seem foreign or intimidating for very long.

In anticipation of the Big Move, I’ve attended several Kindergarten entry meetings and parent panel presentations over the past few months. From these, I’ve gleaned a few ideas that might make the move “into the mainstream” a bit smoother for you and your child. These tips are by no means written in stone, nor are they exhaustive. You will notice that I have not included information on IEP meetings or timelines or the types of services available, as these will vary depending on your school of choice and your child’s needs. Whether your child is joining his or her hearing peers in Kindergarten or at a different age, the following will hopefully provide you with some starting points for creating a successful transition for your child.

Tip #1 TRUST IN YOURSELF You know your child best! Always keep this in the back of your mind as you meet new professionals and teachers. While each of them is probably very experienced at what they do, they will just be getting to know your child. So as parents, be confident in your experience and your knowledge base. Your contribution is significant and will be vital to the successful transition of your child into this new environment.

Tip #2 DO YOUR HOMEWORK You have options as to school choice. Make a list of priorities for your child’s school environment – what are your goals for your child? Some considerations might include location, class size, the school’s attitude towards communication access for your child and the school approach to social responsibility and bullying. If socializing ranks high for you, you might choose your local neighbourhood school for ease of building friendships with the neighbourhood kids. Research different schools that interest you, online or by asking other parents. Most principals will welcome your phone call and your visit and this is a great opportunity for you to ask questions and also to guage the school’s climate.

Tip #3 PREPARE YOUR CHILD Most schools hold a Kindergarten orientation event around May for the children entering in the fall. However, if your child is older, it might be beneficial to request a tour in May or June. Be sure to bring your child and bring your camera so you can take pictures of the gym, library, office and classroom for their grade. During the summer break, you and your child can look through the photos. Often the school-based team will provide a little booklet about the school, including names and pictures of the principal, secretaries and teachers, details of daily routine and special events. In late August, you could bring your child back to the school for a refresher and walk through the school again. Many teachers will already be in their classrooms prepping for the start of school. If you have the opportunity, you might look to connect with some of the other parents whose children will be entering school with your child in the fall. This could give your child a sense of familiarity and comfort once September rolls around.

Tip #4 SEPTEMBER HAS ARRIVED! Kindergarten is now a full-day program throughout BC and shifting from a part-day preschool program to a full-day, full-week one regimen might be a big adjustment for your child. Many schools set up a 1- or 2-week gradual entry program, building up to a full-day of school and also incorporate daily quiet time in the afternoons. In addition to this, you can also help shape your child’s gradual entry into the classroom if you think your child needs it. Reach out to other parents and invite children from your child’s class over to play at your house. Even staying after school on sunny days to play on the playground with the other kids will give your child more opportunities to forge friendships and a sense of belonging to his or her new school. Though Kindergarten is a busy year, full of many firsts, keep in contact with families from your early intervention centre if you can, as these friendships are easy, well-established and comfortable for your child.

Tip #5 TOOLS FOR GOOD COMMUNICATION These days, many classrooms are equipped with a computer and more and more teachers are available via email on their iPhones or iPads. Others teachers still prefer the more traditional method of correspondence: writing comments in a communication book and discussing your child’s progress during parent/ teacher conferences each term. The amount of actual face time you get with your child’s classroom teacher will vary from teacher to teacher, year to year. The reality is that teachers often have little time to chat at 3pm and parents often work and can’t be present at the school every day. The home/school communication book can be a valuable tool. It will have space for the classroom teacher, the hearing resource teacher and educational assistant (if one is assigned to your child) to provide feedback on your child’s day. There will also be space for you to convey comments or ask questions. A great idea is to set up the communication book in a way that your child can be involved with daily entries as well. For example, the sheets in the daily communication book could be in picture format – where the child can circle the activities they did that day, circle their favorite, least favorite and also rate their day (smiley face/ neutral/ unhappy face). In addition, some teachers are very open about their lesson plans and the themes or topics they will be covering each term. This type of information can be immensely helpful for introducing topics at home, reinforcing concepts or simply keeping track of what your child is learning.

Tip #6 BE PRESENT, BE INVOLVED If you are able, get involved at your child’s school. There will be many opportunities to do so. Attend PAC meetings, volunteer in the classroom, supervise on field trips. It’s the closest thing to being a fly on the wall! For working parents, this may understandably prove difficult and if that kind of involvement is just not possible for you, be sure to attend concerts and any special events when you are able. This way, the school administration sees your commitment to and interest in the school and you can get the inside scoop on the school culture, the other parents and your child’s peers.

Tip #7 THE TEAM APPROACH As parents, you are key players on your child’s support team and taking a positive, collaborative approach will lay the groundwork for building good relationships with the various teachers and professionals who will be part of your child’s school life. Continuity from your preschool/ early intervention program can be helpful for a successful transition to the new school. Your early intervention team is a great resource, as these professionals and teachers have come to know your child very well and can provide reports and assessments and possibly be present at IEP and transition meetings. Often the new school will send a group to the preschool to observe your child in that environment but apparently this is not guaranteed. A possible alternative suggested by some parents is to make a video of your child’s “can’s” and “can’ts” in preparation for the transition meeting with the school (usually held in May or June). It is important to present a realistic image of your child’s mode and level of communication and functioning. The principal can afterwards share the video with other staff to gain a better understanding of your child.

Tip #8 WHAT IF? Despite the best laid plans, sometimes things don’t play out as you expected. Should a concern arise, you will need to communicate this with the school, starting with your child’s classroom teacher. For many parents, putting on the “advocate’s hat” may be new and seem uncomfortable but keep in mind that you are your child’s representative and only speak for his or her best interests. Hopefully with a good communication system in place and a good working relationship with your child’s school-based team, any issues can be ironed out. There is always room for adjustment along the way and you can change what’s not working. For advice, you can always turn to your fellow parents, early interventionists and parent-led organizations like BC Hands & Voices, CHHA Parents’ Branch and Family Network for Deaf Children (FNDC). So as my son’s final year of preschool enters its final term, I somehow feel like the student leaving to attend a new school! Yes, in some ways it is a daunting time with another big learning curve involved, but it’s also an exciting time filled with opportunity. But I draw strength thinking about all that I’ve learned over the past few years. There are loads of resources available to help parents like us as we prepare for this next stage of schooling for our children. So get connected and get excited! The future awaits!

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Reflecting on Early Intervention

By Kim Shauer

Wikipedia defines Early Intervention as “a system of coordinated services that promotes the child’s growth and development and supports families during the critical early years. Starting with a partnership between parents and professionals at this early stage helps the child, family and community as a whole”.

I had vaguely heard this term prior to having our second child, but it had little meaning to me until we found ourselves needing it as a road map for the new path we found ourselves on once Julia was born. As we now prepare to transition our 4-year-old daughter, Julia, into Kindergarten this upcoming September, I feel excited for what is to come and wistful in knowing I soon must say goodbye to these early years and the many amazing people who have helped shape this stage of our daughter’s development.

A little over 4 years ago, we took Julia home from the NICU at BC Children’s Hospital with a variety of referrals and suggestions on how to care for our new baby with a diagnosis of a rare chromosomal condition. Although Julia’s moderately severe to profound loss hearing levels bilaterally would not be identified until 17 months of age, from the beginning she required the expertise of many medical specialists and community therapists including occupational therapy, physiotherapy, feeding team, vision therapy and IDP. With the hard of hearing diagnosis on top of everything else, we added audiology, hearing aids, speech therapy and Deaf/Blind consultation to our growing team of services.

DSC03622

Looking back on those first weeks, it was our “early intervention” teams and the experienced people on those teams that humanized all of our feelings, helped soften the blow of the many diagnoses and navigated the various twists and turns for us through all of the information that had been provided. Before long, we felt ready to participate in supportive group settings that gave us the chance to meet other families in similar situations and with like-minded goals. These early intervention programs provided a safe place to talk, receive parent to parent support and learn from the experiences of families and the diverse needs of children who have come before us. In addition to being an invaluable resource, the social and emotional aspect of “early intervention” to our family has been as vital as the therapies and equipment that support Julia.

We will also take away the knowledge of how to confidently and effectively advocate for our children, along with the understanding that it is okay to take a break and do something for ourselves…and not feel guilty about it! I want to strongly encourage families to take full advantage of all of the early intervention services available to you. The number of appointments may seem daunting and the paperwork at times can feel endless. The various assessments we complete remind us to stop where we are once in awhile, take a good look around, reevaluate the choices we have made and change direction if we feel it may be better for our child and our family.

Reflecting on our journey so far, I am glad we have made it a priority to capitalize on the opportunities available to us and develop relationships with our early intervention partners. At 4 years old, Julia is a healthy girl with a complex condition, multiple needs, the developmental age of a 1-year-old and a smile that can light up an entire room. Through the help of our early intervention teams, I am feeling prepared for the next leg of our journey, and the road ahead seems bright and full of possibilities.

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