Victoria Area Get-Together March

 

VICTORIA Area Get-Together – Thursday March 5th
An opportunity to talk with other families and share information, suggestions, tips…
Toys and games will be set up for the kids to play and give parents the opportunity to chat! Light snacks will be provided.
WHEN: 10am- 12pm

WHERE: Pearkes Building – Playroom
3970 Haro Road, Victoria 
(Corner of Haro & Arbutus at Queen Alexandra Centre) – Look for the orange and blue balloons!

CONTACT: Kim Shauer at kshauer@cw.bc.ca to RSVP by March 2nd or with any questions.

Please feel free to download the original PDF here: Victoria HV GBYS 2015 Event

 

 

Victoria HV GBYS 2015 Event.jpg-page-001

Posted in Events | Comments Off on Victoria Area Get-Together March

What’s in a Name?

What’s in a Name?

By Lisa Cable

My daughter is Deaf. Or deaf. Or hard-of-hearing. Or functionally hearing?  Or any other fancy label that I can come up with to call her. She was born with a bilateral mild to moderate loss, and wore two small hearing aids starting at four-months-old. Her hearing loss has progressed due to enlarged vestibular aqueducts (EVA), and she is now in the severe to profound range. Presently, at age four, she wears one (bigger) hearing aid and a cochlear implant. She listens, she speaks and she signs. She also ignores me when she sees fit. She identifies with hearing peers and loves to be around other deaf and hard-of-hearing children. Her many preschool teachers range from hearing to profoundly deaf and unaided to everything in between. She loves them all.

What's in a Name?

What’s in a Name?

 

In the midst of all of this, my struggle has been what to “call” my daughter. How do I introduce her to people so that they understand her abilities? How do I describe her in a way that accurately reflects who she is? The challenge is a moving target most of the time.

In a Deaf culture environment, I often introduce Lily as hard of hearing. At this point in her life, I don’t think she fully identifies with Deaf culture. However, in the “hearing world”, I say that she is deaf. I learned that if I said she was hard of hearing, some people would just yell at her, thinking that was the solution.

My dream world would be to have everyone she meets go through an interactive training session that introduces hearing loss, Deaf culture and my daughter’s unique audiological and communication needs. I suppose people would just think I was weird if I whipped out the PowerPoint as soon as I met them.

Beyond the “labels” specific to hearing loss, there are broader ones. Is Lily disabled? Is she a special needs student? Even though these may be accurate in some sense, I feel that in today’s society there are certain negative connotations attached to these words that I don’t like. I know there are many that don’t even like the term “hearing loss” as the word “loss” implies something positive that is now gone. Some adults point out that they never had a loss; they were born Deaf.

Maybe you’re saying to yourself: why are you worrying about this? Shouldn’t it be your daughter’s decision how she talks about herself?  Absolutely!  However, as a precocious four-year-old, Lily’s identity is wrapped up in whether she wears her Spiderman shoes or her fuzzy pink boots to preschool; she is not concerned with her greater personal identity now.

Maybe that’s the crux of the matter. Maybe I need to take a step back and just let her discover who she is, without labels. I want her to see and hear me talking about her in positive terms so that she can use that as an example for future advocacy. Maybe I need to take away the labels, the titles and whatever else I call her. Because to me, to her dad, to her brother and to everyone that loves her….she is simply Lily.

….she is simply Lily.

….she is simply Lily.

 

Posted in Articles, Families to Families | Comments Off on What’s in a Name?

Parent Coffee Night- February

Please join us for our next coffee night on Monday, February 23rd 2015!

parent coffee

We hope you can join us to:

  • Get to know other parents of kids with hearing loss
  • Share ideas that support your deaf or hard of hearing child…or just come to listen
  • Have a night off with warm drinks, yummy treats and good conversation

WHEN: 7:30 – 9:00pm

WHERE: #27-7488 Southwynde Ave., Burnaby
(Look for the blue & orange balloons)

CONTACT: Kim Shauer at kshauer@cw.bc.ca to RSVP or with any questions.

Posted in Events, Families to Families | Comments Off on Parent Coffee Night- February

Recent Events Around Town

by Joy Santos

It has been a busy and exciting time for my daughter, Teanna, and I as we have had a several opportunities to attend local events that are accessible for the Deaf community.

In May 2014, Sean Forbes, a Deaf musician, visited Vancouver to perform.  Our city was one of the stops during his tour across North America.  His concert was held at the Broadway Campus of Vancouver Community College and required the purchase of tickets.  Many people had attended, as the theatre was almost full.  There were varying ages present, from younger children with their families, teenagers, and adults.  This event was accessible because all of his songs are performed in ASL, and there was also a large screen with the song lyrics as the stage backdrop.  Loud music and appropriate lighting effects added a nice touch.  Aside from his musical performance, Sean Forbes also made sure to include visits to both the elementary and secondary Provincial Schools for the Deaf as part of his itinerary.  In the schools, he gave inspirational talks to the students, entertained questions and comments, took photos with them, and held a musical performance as well.  The response from the students was a welcoming and positive one, evident in their conversations with one another, and at home with their families.  It seemed to encourage them to dream and think positively…  to be interested in music, dancing, and performing… some children even mimicked Sean Forbes’ attire.  I feel that he is such an iconic and inspirational role model.  To learn more about Sean Forbes, the band, and their music, visit http://www.deafandloud.com

Also in May, we attended a fundraiser that was hosted by Shayla Sabbagh, the first Deaf woman to compete in the Miss Universe Canada beauty pageant.  Shayla was introduced to me by a friend who also happened to be her personal trainer who was helping her prepare for the competition.  She had lost her hearing as an adult, while attending college, and has since then embraced the culture and language. She and her family learned ASL, and she also took lip-reading classes.  Shayla also has epilepsy.  The fundraiser was for Operation Smile, her charity of choice, and was held at a local restaurant.  We had primarily only been communicating via social media, and I also learned more about her through various websites.  The fundraiser would be my first time meeting her in person, and, upon doing so, my preconceived notions and stereotypes of what a pageant queen may be like instantly vanished.  Yes, Shayla was definitely poised and articulate, hair perfectly coiffed, makeup flawless, and stunningly dressed.  However, I felt like she could have just as easily been wearing a much simpler outfit, and would still exude beauty and confidence.  She was very cordial with all her guests, as well as candid and down-to-earth in all her interactions.  The event featured raffle draws for door prizes, a candy and cupcake bar, a specially priced food menu, and live music for entertainment.  It was accessible because there was an interpreter present, and it enabled my 6 year old Teanna (the only Deaf guest J) to enjoy the event and practice autonomy.  It was a fantastic opportunity to mix and mingle, and I am so happy to have found a friend in Shayla – and yet another role model for my daughter.  Shortly after the fundraiser, Shayla went off to Toronto for the competition, and successfully won the Miss Congeniality award!  A heart of gold, and loved by everyone, indeed!  To learn more about Shayla and her journey, read her bio at http://missuniversecanada.ca/2014-national-finalists/shayla-sabbagh/

The world renowned Broadway musical, Wicked, toured Vancouver in the month of June.  Another local organization, Family Network for Deaf Children (FNDC), collaborated with Broadway Across Canada to provide ASL interpreters for the performance one evening.  The interpreters were fully funded for by Broadway Across Canada.  I learned about this opportunity through a flyer that my daughter had brought home from school, which had also contained a discount code for ticket purchase.  Knowing that this was possible excited me!  Teanna and I enjoyed our night out to watch the show.  It goes without saying that the performance itself was nothing short of spectacular!  However, the added component of having interpreters present added a more personal touch to the experience.  That evening, we had bumped into a number of familiar faces from the Deaf community.  There was a group of women who seemed to be enjoying a girls-night-out, a couple out on a special date-night, a group of college students hanging out, and Teanna had even recognized some staff from her school!  As a parent of a young child, I was overcome with emotion.  I was reminded of the time not too long ago, upon finding out that she was Deaf, when I had felt overwhelmed and sad at the assumption that she would miss out on experiences such as these.  I remembered thinking that she would not be able to enjoy music, I wondered what kind of social life would be available to her in the future, and I had thought about numerous situations where she would possibly be excluded from.  Yet here she was, at a Broadway Musical, absolutely fixated on the performance.  She had made comments such as “I can feel the music in my chest,” “The costumes and their makeup are beautiful!” “Their dancing is funny,” and some pertaining to the storyline that she was getting from the interpreters there.  Later on, I was put in touch with the gentleman who was responsible for arranging this opportunity for access.  I had thanked him and told him that the forethought in providing access via ASL interpreters was greatly appreciated.  I explained that providing language was just the tip of the iceberg, and that the best part of such a gesture was that it had brought individuals from the community together for an amazing experience.  For more information on Broadway Across Canada in Vancouver, visit http://Vancouver.broadway.com

School’s out for Summer!  This means plenty of time to explore what the city had to offer!  The Vancouver Aquarium has recently introduced the availability of accessible tours.  For us, this meant that volunteer student interpreters would be available during our visit to provide access during the shows and programs there.  Arranging for this was such a simple process.  It can be done via e-mail or a telephone call.  I called to inquire about the service.  I was asked when I had planned to come by for a visit, how many people would be in the group, and how many individuals would need an ASL interpreter.  My contact had also provided me with a schedule of the shows that would be taking place on the day of our visit, and asked me which ones I would be trying to attend.  The aquarium makes all the arrangements, and the confirmation was sent to me via email.  At least 2 weeks notice needs to be given, to allow them time to contact and source an available interpreter.  The experience was awesome!!!  Our group consisted of 4 adults and 6 children. 1 adult and 3 children aged 4-6 benefitted from having interpreters present.  We had a team of two interpreters working with us.  We were also provided with a Vancouver Aquarium volunteer who served as a guide.  He toured us around the facility and provided facts and thorough explanations of the exhibits and galleries.  He knew beforehand which shows we had wanted to attend, and he would head over there prior to our group to save us seating that would provide the best visual access.  I was amazed and very grateful for how accommodating the Vancouver Aquarium was for our visit.  These services come included with the price of admission.  Some tips to make the most out of the experience are:

  • Call as far ahead in advance as possible to allow ample time for arrangements to be made.
  • Be flexible with the dates, and try and provide a back up date, just in case there are no available interpreters.
  • Try to plan your visit as best as you can.  Let the staff know which shows you plan to visit.  Use the schedule provided as a guide.  The interpreters are available for 3 hours.
  • The aquarium has a 4D theatre attraction which showcases different documentaries.  Let the staff know if you would like for this to be a part of your experience.  It is dark inside the theatre, but flashlights are available in order to see the interpreters, or, a script can also be provided beforehand in order to be familiar with the upcoming film.
  • Be aware that there is an accessibility discount on admission.  Be sure to ask about this upon purchasing tickets at the entrance.

For more information on the Vancouver Aquarium, visit http://www.vanaqua.org  To inquire about or book and accessible tour, call Visitor Experience at 604-659-3565 or email visitorexperience@vanaqua.org

Summer vacation means two months of children stuck at home or in childcare all week…  Unless they are registered for Summer Programs with Deaf Youth Today (DYT), which is a Summer Program managed by FNDC!  Throughout the Summer, programs that accommodate Deaf/Hoh children and youth ranging in age from 5-16 took place on a weekly basis.  Some programs were also available to hearing siblings and Children of Deaf Adults (CODA) who use Sign Language.  Voice interpreters were available upon request.  Some examples of the programs available include:

  • Just Being a Kid Week:  This program was for Deaf/Hoh children aged 5-11 and was a fun-filled week of arts and crafts, trips to the pool/park, and field trips.
  • Guy Time:  A program for Deaf/Hoh males aged 12-16 with outdoor and team building activities with the guidance of positive role models.
  • Summer Immersion Week:  This was a week available to both parents and children.  There was a separate program for adults comprising of workshops, while the children continue to have a fun and busy week of field trips and activities.

The rates to participate in these activities are extremely affordable, as they are highly subsidized.  The child to staff ratio was low, ensuring safety and adequate attention for each child who attends.  Counsellors also undergo thorough training prior to the programs starting.  Children who participate in DYT programs are guaranteed to have an enjoyable Summer break!  It was very apparent that the staff hold a high level of commitment to fostering both language and social development among those who are involved.  Registering your children early is highly recommended, as program spaces do fill up quickly.  To learn more about FNDC and DYT, visit http://www.fndc.ca

The last few months have been such a whirlwind of activity and fun!  Teanna continues to gain newfound knowledge of the world around her, and I have had eye-opening realizations that there are plenty of opportunities available for the both of us to learn and grow.  I have visions of Teanna attending concerts or plays with her social circle in the future, never missing a beat in the dance of life.  I am hoping when that time comes, I will still be cool enough to make the cut to come with her.  Perhaps one day, she may decide to become a DYT camp counsellor, and be a positive role model to Deaf children, inspiring them, just like how the current DYT staff inspires her.  It is helpful to me to know about what resources are and will be available to her, and what I can continue to keep advocating for in order to ensure that the future is able to accommodate her.  I feel that as we explore these together, it will also contribute to her knowledge of what is available to her, and add on to her budding confidence to advocate for herself.

I am positive there are events and resources that are similar to the local ones I have mentioned here, which are just a small fraction of everything else taking place around here.  I learned about all of these through the various networks I am continuously building around myself, and through my involvement in the community – whether it is through various organizations and early intervention agencies, or online on message boards and social media.  There is so much available out there, so go ahead and reach out!

Posted in Events, Uncategorized | Comments Off on Recent Events Around Town

A Dog Named Bobby – Past Tense

By Anja Rosenke, British Columbia, Canada

We were off to Scotland. And each of us was looking forward to something different. Me, the delicious scones and walks in the countryside, my husband seeing his family – and maybe a few distilleries too. Our 8-year-old daughter hoped for a chance to spot the elusive Loch Ness Monster and to see Scotland’s most famous dog, Greyfriar’s Bobby in Edinburgh. Our hard of hearing 6-year-old son was simply excited to watch movies on the airplane and see his cousins again.

As with any trip, the planning and anticipation are a big part of the fun. So we went on Google Earth with our children and located their grandparents’ house, thousands of miles away. We made a list of places to visit and fun things to do. We showed them photos of relatives who weren’t familiar to them. We packed our suitcases and collected our passports, ready for adventure!

For the most part, our planning and preparation paid off. The kids were excited and informed about going to Scotland, talking about the colors of the flag and how the money was different. It was especially important for us to encourage this kind of dialogue with our hard-of-hearing son.

He was born with profound bilateral sensorineural hearing loss before universal newborn screening was in place in our province. And though we were fast-tracked through the cochlear implantation process and began receiving services very quickly, the late identification of his profound hearing loss meant significant language and speech delay. We would be bridging his communication deficits for several years to come.

Through our years in early intervention, my husband and I had been taught the importance of providing information about events in advance of their happening – be it a dentist appointment, seeing a new movie, or in this case, readying ourselves for big trip abroad. We enthusiastically took on the task, investing in dry-erase boards and posting a giant calendar on the wall. We made many experience books and kept a journal.

In our family, this sharing of information usually took the form of conversations accompanied by visual aids – photos, books, maps, and even as last resort, stickmen drawings on a napkin. Anything really to help our son grasp what was to come and fill in the blanks.

For any child, strategies for pre-loading and reinforcing new information can help to ease transitions and take some of the “unknown” out of new experiences. Factor in a hearing loss, and suddenly this kind of advance preparation becomes crucial.

Hearing children learn so much about the world by overhearing information in their environments throughout the day. This is called incidental learning, which isn’t to say that it’s any less important. On the contrary, putting all those bits of information together – all day, every day – helps a child piece together an understanding of the world around us. Those little snippets really add up over the years, and this is an area where our deaf and hard of hearing children are at a disadvantage. They often need to be taught things more directly instead.

Studies cite that up to 90% of what very young children know about the world comes from incidental learning. (Moog & Geers, 2003). That is a staggering and sobering statistic, when you consider the wealth of information that a hearing person is exposed to each and every day and what our deaf and hard of hearing children may miss out on.

As parents, my husband and I work hard at filling in the missing pieces of information for our son because for us, at the very heart of it is that our son be included. And in this case, inclusion means accessing the same information as everyone else. That may be a tall order, given our son’s hearing challenges but we must try.

IMG_3483We arrived in Scotland and breezed through a few things on our To Do List, and eventually found ourselves in Edinburgh to see Greyfriar’s Bobby. Now, for those of you who haven’t heard the tale, Greyfriar’s Bobby was a very special dog who remained by his master’s grave in the churchyard in Edinburgh’s old town for 14 years after his master’s death. The local children visited him and cared for him during those years. And then, upon Bobby’s death, he was buried alongside his owner in the same churchyard.

What a beautiful, heartfelt story. Naturally, we were all eager to see where this had happened. We had read the book back home, and now had walked across the city to get to the churchyard. Happily we snapped a few photos in front of the statue of Bobby and as we entered the churchyard, my son asked, “So where’s Bobby, Mom?” expecting to finally meet this famous dog.

A completely sensible question. The only problem was, we had somehow failed to convey to him that this touching tale of loyalty and love had taken place almost 150 years ago.

I was floored – could we really have missed sharing that key piece of information with our son? Perhaps we had spoken of the story in the past tense and he hadn’t realized it was the distant past. Or he simply may not have heard that part of the conversation. Whatever the case, that detail had been missed. And it meant there was no dog at the churchyard. And so the tears flowed.

It took a long time to calm our son down after that shocker. Our daughter finally managed to console him by suggesting they pick some lawn daisies to put on Bobby’s headstone. Perhaps a more dramatic gesture than most tourists show, but a fitting end to our visit.

IMG_3525Situations like our son’s disappointment at not personally meeting Greyfriar’s Bobby in Scotland may not always be avoidable. But for me, our visit to the churchyard that day will serve as a good reminder as to why we as parents spend the extra effort and time in doing what we do – observing and anticipating where gaps in understanding might occur, diligently providing background information to a new topic, event or excursion, providing context or details to a situation, even just putting a name with a face.

Simply put, helping to fill in the blanks where the hearing falls short.

Posted in Articles, Uncategorized | Comments Off on A Dog Named Bobby – Past Tense

2nd annual Fun Family Day Picnic – Review

On June 14th, 2014 BC Hands and Voices (BC H&V)/Guide By Your Side Program (GBYS), Canadian Hard of Hearing Association of B.C. Parents’ Branch (CHHA – BC Parents’ Branch), Family Network for Deaf Children [FNDC; Deaf Youth Today (DYT)], Canadian DeafBlind Association of BC (CDBA-BC) and the Provincial Deaf and Hard of Hearing Services (PDHHS) jointly hosted the 2nd annual Fun Family Day Picnic. The picnic provided a great opportunity for families with a deaf, deafblind, or hard of hearing child to come together and learn from one another. Parents were able to network and learn information about the services available to help them navigate the world of raising a child with hearing loss while kids enjoyed a variety of fun activities and entertainment. Even parents with young babies came for the wonderful opportunity to meet and learn from teens and young adults with hearing loss; future role models for their babies!

This year’s picnic was held at the PDHHS Victory Hill Residential property in Burnaby, BC. Despite a steady downpour of rain, over 200 people attended the picnic! Tents were set up across the property and provided ample coverage for families to sit down, mingle and enjoy the various activities and entertainment. There was an information table set up representing the different parent organizations, as well as a table where families and their children could participate in arts and crafts. Deaf Youth Today (DYT) staff engaged children in organized games. Artists from A-Star Art Parlour provided face painting, airbrushed tattoos and balloon animals. Nearer the end of the day, Max-i-Mime had the children and their families in hysterics. All-in-all, it was a pretty fun-filled day and a great team effort!

Join us for our next event, the upcoming Parent Workshop happening Sat. Oct 25, 2014 at Douglas College.

http://www.bchandsandvoices.com/wp-content/uploads/2014/09/Parent-Workshop-Educational-Excellence.pdf

For more information about these organizations, to sign up to receive emails and newsletters, or just to find out about how you can get involved, please check the following websites:

 

 

 

Posted in Events | Comments Off on 2nd annual Fun Family Day Picnic – Review

Nanaimo Area Get-Together

This event for families of children who are Deaf or Hard of Hearing will provide an opportunity to talk with other families and share information, suggestions, tips. Toys, games & bubbles will be set up for the kids to play and give parents the opportunity to chat! Fruit & cookies will be provided but not lunch so if you wish to have lunch please bring one along for you and your children.

Where: Nanaimo Child Development Centre Community Room, 1135 Nelson Street, Nanaimo,  (look for the orange and blue balloons!)

When:  Tuesday October 28th, 11:30 am to 1:30 pm

Please RSVP to: kshauer@cw.bc.ca, Phone: 604 612-9193

Please download and share the event flyer!

Please note: Parents are responsible for their own children during this event. 

ASL Interpreter is available upon request.

Posted in Events, Uncategorized | Comments Off on Nanaimo Area Get-Together

Parent Workshop: Educational Excellence

Connect with other parents of deaf and hard of hearing children from 0-18 years of age. It’s never too early and never too late to learn more about how to encourage educational excellence for our children!

When: Saturday October 25, 2014, 9:30 am – 3:00 pm
Where: Douglas College, 700 Royal Ave., New Westminster, Room 1630/1640 – Level 1 South

Join us for our fall parent workshop featuring two captivating speakers from the U.S. – Janet DesGeorges (founding member and executive director of Hands & Voices) and Mark Drolsbaugh (author of “Madness in the Mainstream”). We will explore the unique aspects of supporting children who are deaf/hard of hearing while examining the core components that lead to success for ALL children. The educational needs of our children vary greatly – but they also have so much in common. As parents, what information do we need to ensure success for our children?

For Your Kids

Childcare and DYT Fun Day have limited space & will be provided on a first come, first served basis. CHILDREN MUST BE PRE-REGISTERED online – when full, kids registration will be closed.

Baby to preschool age: 

Childcare will be provided onsite for deaf/hard of hearing children and their hearing siblings up to age 5 (numbers limited due to capacity restraints).

Kingergarten to grade 7 age: 

DYT FUN DAY!

Due to our limited funding and staffing:

  • We are limiting registration only to deaf & hard of hearing children who have a parent attending the Parent Workshop
  • We don’t have additional resources for one-to-one workers, but will work with families to try our best

For more information: contact: fndc@fndc.ca

Communication

ASL Interpreters & captioning will be provided. Learn from the speakers and network with other parents and role models.

Registration

Cost: $10 per person. Lunch is included for adults and children in childcare. DYT FUN DAY doesn’t include lunch; fees go to program costs. RSVP by October 10 online at www. chhaparents.com. For more information, please see the event flyer, or contact info@chhaparents.com.

Posted in Events, Uncategorized | Comments Off on Parent Workshop: Educational Excellence

Parent Coffee Night – September 15

Please join us for our next coffee night on Monday, September 15, 2014!

parent coffee

We hope you can join us to:

  • Get to know other parents of kids with hearing loss
  • Share ideas that support your deaf or hard of hearing child…or just come to listen
  • Have a night off with warm drinks, yummy treats and good conversation

WHEN: 7:30 – 9:00pm

WHERE: #27-7488 Southwynde Ave., Burnaby
(Look for the blue & orange balloons)

CONTACT: Kim Shauer at kshauer@cw.bc.ca to RSVP or with any questions.

Posted in Events, Uncategorized | Comments Off on Parent Coffee Night – September 15

Value added service: the story of a hard of hearing audiologist

by Jen Gow, North Vancouver

jennyhAs parents of deaf and hard of hearing children, we draw support from different groups of people. There are the usual suspects that all parents hope they can call on: family, friends and neighbourhood community. Our network extends beyond this though; we also look to professionals, and deaf and hard of hearing peers to educate, mentor and support us; to bring us up to speed and keep us on track in this new community we find ourselves in.

With this in mind, it was a real treat to welcome Jenny Hatton to be our guest speaker at the Coffee Night following this year’s BC Hands & Voices AGM in March. Some of you will know Jenny in her capacity as an audiologist with the Early Hearing Program and BC Children’s Hospital. Jenny has the unusual advantage of being able to share her perspective on hearing loss from both a professional and personal level.

Jenny was diagnosed with moderate bilateral hearing loss when she was two and a half years old. Although Jenny demonstrated typical development in most areas, and there was no family history or risk factors for hearing loss, Jenny’s parents noticed that her speech production was not on par with her big sister. The family doctor declared Jenny’s hearing was fine after finger snapping behind her ears when she was one and a half years old. A long-awaited referral to an audiologist revealed the true nature of Jenny’s hearing through tests in a sound booth followed by verification with auditory brainstem response (ABR) testing.

At that time in the 1980’s, families were advised to decide on one mode of communication, sign or oral, with little support for combined approaches. It became apparent soon after being fit with hearing aids that Jenny was a hearing kinda gal! She loved her hearing aids and rapidly developed speech. A speech language pathologist visited her home, and Jenny’s parents, who were teachers, built on this foundation. After attending specialist services for preschool (Children’s Hearing and Speech Centre of BC, known as the Vancouver Oral Centre at the time) she went on to kindergarten in the mainstream elementary school where her mum taught.

Jenny learnt strategies to optimize her hearing in school, for example, classroom positioning (set-ups were more static in those days). She recognizes now that the advocacy of her parents’ paid dividends with teachers likely modifying their teaching strategies. During her school years, Jenny didn’t really perceive herself as being hard of hearing. This, combined with an independent spirit, led to Jenny’s reluctance to work with the Hearing Resource teacher, especially during high school. Her grades were good – she didn’t need help! (I’m sure this rings some bells for most of us when we reflect on our teenage years.). In high school, Jenny also became self-conscious of the technology that facilitated her hearing; although she continued to love the function of her hearing aids, she started to hide them. She also didn’t adopt using a FM system until her university years, and now realizes that there were details she was missing out on.

Jenny learnt as a young adult to embrace the hard-of-hearing aspect of her identity, no longer concealing her hearing equipment. Although this aspect of Jenny’s life has doubtless had some influence on her career choices, it was a somewhat circuitous path that led her into Audiology. After switching degree course three times, Jenny took on a research assistant position at the Human Auditory Physiology Lab (HAPLAB) for several years, where her interest in audiology grew. As an audiologist, she now provides ABR testing at BC Children’s Hospital, and supports and trains other audiologists around the province.

Jenny was happy to field questions from the fifteen parents in attendance. We covered topics ranging from deaf/hard of hearing peers and support groups, to extra-curricular activities, self-advocacy and identity, genetic testing, use of technology…

From a personal point of view, I can attest to the power of Jenny’s story. Jenny identified my daughter’s severe-profound hearing loss when she was six weeks old. At the instant of being told this news, I felt lost. What does this mean? I don’t know anybody with hearing loss. Why is this? Are they ‘hidden’ in my community? Are they so well integrated that I don’t notice? Jenny answered my questions very professionally. The nuances are lost in my memory but what will stick with me forever was Jenny telling me that she had a severe hearing loss. This young, professional woman had a hearing loss. Of course everybody’s path is varied but this detail was my starting block; it gave me the strength to stand up, walk out, drive home and tell my family what I’d just found out.

I’m sure that you’ll agree that Jenny’s story is empowering on many levels. It is nevertheless worthwhile reflecting that Jenny’s family found it difficult that her hearing loss was not identified earlier. Thankfully, this situation has become rare in BC since the initiation of the BC Early Hearing Program. Most families now have the opportunity to draw on services and supports sooner to help us figure out the best way to support our deaf and hard of hearing children. In fact, BC is now leading the way in this; it is the only province in Canada to achieve an “Excellent” Grade on Early Hearing Detection and Intervention*. Go BC, go!

* Speech-Language and Audiology Canada, 25th March 2014,
Report Card on Early Hearing Detection and Intervention
(http://sac-oac.ca/system/files/resources/Report%20Card-2014_EN.pdf)
Posted in Articles | Comments Off on Value added service: the story of a hard of hearing audiologist
    Sign Up for Our eNewsletter!
  • H&V Mission (ASL)

  • Guide By Your Side Program (ASL)

  • Diversity, Equity & Inclusion

    We at H&V are looking within ourselves and within the organization to do better in supporting Black lives Matter. Learn more HERE.

  • Upcoming Events

  • Recent Posts

  • Categories